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PHenomenal awareness project

May 23rd, 2016 Comments off

What are some of the things that you love? Friends. Family. A breath of fresh air. Small goals, big dreams, and enough years to make them come true. If you’ve been told you have 2.8 years or fewer to live due to an illness, you consider what you have left to do, what you’d be giving up, and how you can fight it for more time, more years.

SteadyMed Therapeutics, in conjunction with the Pulmonary Hypertension Association, has launched the PHenomenal Awareness Project to give voice to the faces with Pulmonary Hypertension, those who suffer from high blood pressure in the lungs. People with PH typically have shortness of breath and difficulty breathing, which make it challenging to do simple tasks such as walking a short distance. Small joys such as hiking, singing, even carrying on with their day-to- day life can be a challenge.

As it is an illness that is relatively unknown, only 14 drugs have been approved for the treatment of PH to date, yet approximately 2100 people are diagnosed and treated for PH annually. To raise awareness, the PHenomenal campaign is asking people with PH to speak up and submit photos and videos on social media.

In hopes that more drugs will come on the market to relieve PH symptoms.

In hopes that more voices will speak out for PH to lend courage to those battling it.

In hopes that there will be a cure one day through united effort.

These are some of the PHenomenal faces behind the campaign. Let’s lend strength to their cause.